Dr Sudha's Notes
Onset of diabetes in childhood, also called juvenile onset diabetes, is a life-changing disease. It needs lifelong insulin therapy and regular monitoring of sugar control. Care of a child with diabetes means holding four things steady at once: the dose of insulin, daily diet, daily exercise, and psychological well-being.
Aiming to optimise all these aspects of care and thus maintaining a balance in sugar control needs commitment, knowledge sharing, and willingness to learn new skills, positive thinking, and team approach to care not only by the physicians but also the parents and guardians.
Alleviating the fears, anxiety, apprehensions on part of the parents and child, teaching them the skills of insulin therapy and home blood sugar monitoring, empowering them to choose the appropriate diet, types of diet, calorie counting, carbohydrate counting, are some of the basic aspects of care to attain good control. Regular monitoring of growth, pubertal development, glycaemic control, other evolving endocrinopathies or end-organ problems like vision, heart and kidneys are required to have a good quality of life in childhood and as adults.
To address these issues in a common platform, the Diabetes Support Group was started by the Division of Paediatric Endocrinology, B.J. Wadia Hospital for Children, Mumbai in April 2005. The first meeting was held on 16 April 2005, patients, parents, doctors, dietician, invited guests. These meetings continue every 4 months: medical lectures on new developments in care, quizzes for parents and children, an award for the best-controlled child, parents' interaction, and new ideas. With the help of the Management of Wadia Hospital, and the charity and social commitment of the doctors of the Division of Paediatric Endocrinology, the Diabetes Support Group is a vibrant community of juvenile diabetics and their parents, finding friends in times of distress, providing easily approachable medical care during crisis, and adjusting to a life-changing disease.
Acquiring knowledge and skills is an everlasting exercise. Sugar Sakhi ensures that exercise never stops, not between appointments, not between support group meetings, not at 2am.
, Prof. Dr. Sudha Rao Β· Medical Director & Head of Paediatric Endocrinology, B.J. Wadia Hospital for Children, Mumbai